Chronically Josie

08/28/2026

08/28/2026

08/28/2026

TPN saved my life. And I don’t say that lightly.

Last year, I was literally dying from malnutrition. My body was running out of options, and having access to nutrition through my veins gave me something I desperately needed: a way to stay alive.

But I also think it’s important to talk about the other side of TPN.

TPN isn’t something I ever wanted, and it isn’t something I would encourage someone to choose if their GI tract can still safely be used. There are very real risks that come with long-term TPN, including infections, blood clots, liver complications, and complications from having a central line.

Before TPN, I tried feeding tubes. I tried getting nutrition through my GI tract first. Because when the gut can be used, using it is generally preferred over completely bypassing it.

TPN became my lifeline when those options were no longer enough for my body.

And that’s why TPN will always feel like both a blessing and a curse to me.

I’m incredibly grateful that it exists. I’m grateful that when I was starving and my body couldn’t get what it needed another way, there was still an option to keep me alive.

But this isn’t an easy way to get nutrition. It means central-line care, sterile procedures, supplies, pumps, medications, labs, deliveries, and being connected to a bag for hours every single day. It means knowing that the thing keeping you alive also carries risks of its own.

I have to do this every day so that I can be alive, function, be present, and keep going.

So yes, I will always advocate for using the gut when it can safely and adequately be used. I will always advocate for trying appropriate enteral options before becoming dependent on IV nutrition.

But I will also forever be grateful that when my body couldn’t do that anymore, TPN was there.

It didn’t give me an easy way out.

It gave me a way to stay alive. 🖤

I’m also grateful for lactated ringers 🖤

Just 24 more days and I’ll be in Nebraska, meeting with a liver and intestinal transplant surgeon.

His entire goal is to help people get off TPN when it’s possible and safe. But if coming off TPN isn’t safe for you, he isn’t going to force that either. 🖤

I’m really hoping this appointment gives me some answers and a better idea of what comes next. Latest information I’ve received is all three segments of my colon are not functioning appropriately!

08/28/2026

‼️PSA ‼️

08/27/2026

Coming along nicely

08/27/2026

Hiiiiiiiii ! It’s meeeee again . Going through my things and getting rid of what I don’t need nor want .

I’ll list a price , you can either pay the price or make me another offer .

I’ll post everything in the comments .

You must pay for me to hold your items. You either have to pick up today or tomorrow💜

08/27/2026

I am currently looking for a mobile dog grooming service . It will be so much easier on me if someone can come to my house to groom my dog .

Any help is appreciated 💜

CLAREMORE OKLAHOMA

Also prices would be fantastic too !

08/20/2026

https://www.supportnow.org/help-3d-print-a-wheelchair-6a48dccf-a041-4c9b-abee-09d5870e3f1c

I’m partnering with MakeGood, a nonprofit that connects volunteer makers with children who need custom mobility equipment, to 3D print a custom wheelchair for a child.One of the most important goals of this project is that the child and their family receive their wheelchair completely free of

08/19/2026

Rare disease inspired chair 🦓

This one is up for grabs !