05/04/2026
**🌟 Rant Alert: This Is Our Life 🌟**
Hey everyone,
I felt compelled to share some thoughts that have been swirling in my mind lately. This is our life, and we’re living it every single day, unapologetically. I’m done caring if that bothers anyone else. Honestly, I’m just so tired of the medical profession treating us like an inconvenience.
Now, don’t get me wrong—our experiences in the ER have been mostly positive, and we've had some fantastic support there. But let’s talk about the day-to-day interactions with our general doctors. It’s not really about the doctors themselves; it’s about the whole experience leading up to them—the front desk staff, the nurses, everyone who interacts with you before you even see the doctor. Too often, it feels like they dismiss our challenges because we’re not easy cases.
Trust me, I get it. I don’t always want to deal with me either! But here we are, fighting symptoms, battling through tough moments, and doing everything we can to navigate this life. I’ve been living with Dandy-Walker malformation, those pesky little bubbles in my brain, my whole life. And no, they won’t do anything about them. My husband, who is visually impaired, and I—well, we laugh, we struggle, we cry, and we embrace this life.
We may not always enjoy it, but we’re not afraid of it either. We don’t have a choice but to keep moving forward. It’s not about wanting an easy path; it’s about facing the challenges life throws our way because that’s the hand we’ve been dealt.
So, I’m not sorry for this rant. I apologize if you expected a grand story, but this is our reality. Just a reminder that you are loved, by us and by the Lord. You are worth every ounce of effort you put into your life and the lives of others.
Wishing you all a beautiful, wonderful, fabulous day! 🌈💕
Remember, we’re in this together!
