04/28/2026
Lily update from my daughter…
She has the best daddy 🥹
Yesterday was tough. Tapered off pain meds a little too soon plus getting her out of bed resulted in the return of the scary head pain that had everyone concerned.
Chris refused to leave her side from 8pm until he could talk to her doctors at 9:30am. We shared our concerns, made our suggestions, and agreed on a more aggressive pain management regiment today.
Today was better! She ate a little, reported a lower pain number, survived another PT/OT beating, and got her hair combed and braided 🥰
Chris reads her to sleep just like we used to, what feels like, ages ago.
The reality of just how long this recovery is going to be is settling in. We had the discussion of what rehab will look like, but that’s a post for another day 🥹 Tonight we are grateful for less pain and the soothing sounds of story time with Chris!