The Allergy Queen

10/12/2021

For those of you that are interested - Scott OFFICALLY starts his 27 marathons in 27 days for Mast Cell Action tomorrow morning! He’s just been on BBC Radio Kent raising awareness for MCAS and Mast Cell Action and will be doing more press releases too! So please help give him the boost he needs to get through this amazing feat!

Unfortunately, I can’t be there with him on the side lines as I’ve been readmitted to hospital lasting only 15 days since my last.

💥 Please check out - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True 💥

The below @ links are for Instagram

10/12/2021

Hello Old Friend 👋🏼

I’ve only made it 1️⃣5️⃣ days before seeing you again. My pain in my abdomen became unbearable these last few days.

Yesterday, during another emergency NJ uncoiling/replacement it became too much on top of a extremely distended colon and I began reacting on top of it due to the shear stress of the extreme pain (Cheers Mast Cells 👍🏻)

I was rushed to resus and spent all day there, thankfully so far they are hopeful it’s not a bowel perforation 💥

I’m on the ward, and now being transferred to a Gastroenterology ward in the hopes of answers and possibly moving towards surgical options as my tube becomes coiled and displaced regularly due to my seizures.

I’ve been continually filled with glucogel and IV dextrose as my blood sugars are on the floor and didn’t go above 4 for 15+ hours until the early hours this morning despite all the treatment 😞 and this is major risky for me as below 5 I am at huge risk of seizing ⚡️

Who knows what’s next or what’s going to happen. I just know I want home 😭

Also HUGE SHOUTOUT to Cheeky Tapes for saving the day for my canula as they had no Megan friendly tape! 💕

01/12/2021

It’s the final countdown until Scott takes on 27 marathons in 27 days for Mast Cell Action starting on the 11th of December - this includes running on Christmas Day everything.

Please take a look as just some of our story is here to help raise awareness - we are living a constant cycle of instability and constant hospital admittance and now infections on top of it. I am under 3 hospitals within London and live between my 2 local hospitals simply because of MCAS not including the 15 other diagnosis that I already live with with another 2 being investigated.

Thankfully, we have been gifted a lifeline by my St Thomas’ Consultant, at starting Zolair, a drug that is somewhat a “miracle” drug for some with MCAS alongside the 33 other pills I now take a day.

This is our last resort before hitting some rather strong drugs and procedures to giving me some quality of life.

Please help us support this amazing charity - all proceeds go straight to the charity and does not fund my treatment.

Please visit on Instagram and for updates on the marathons, treatment and general health!

Help SCOTT FISHER raise money to support Mast Cell Action

01/12/2021

The Multiple Faces Of Chronic Illness.

From glam to agony. Unfortunately, my issues with my catheter led me back to hospital as I was in agony passing blood clots through it. They found a nasty infection within my catheter and it’s completely floored me between pain and exhaustion 😭

We made the tough choice to remove my catheter against their advice as the infection wasn’t there before I had it placed literally 6 days ago as it was placed for severe urinary retention after more seizures 🤦🏼‍♀️

This has been an exceptional long and hard week between ambulances, majors, two community nurses visits, countless buprenorphine, gaslighting and begging doctors to listen and thankfully they finally did last night as within the 6+ hours sitting in hospital I began progressing further down the infection rabbit hole and I have a rather too close friendship with sepsis and severe sepsis 😅

Please ADVOCATE FOR YOURSELF or have someone there that can (my husband helped me) MAKE THE TOUGH CHOICES as you are the only one that knows your body.

25/11/2021

REALITY CHECK 🥲 Who sent me the bad ju-ju 👀👀

Today’s, another no makeup day (Unfortunately a throwback photo too to when I was in slightly better health if that’s even a thing now 💁🏼‍♀️)

Unfortunately Two nights ago I ended up being rushed back to hospital by ambulance as my blood pressure had reached dangerous levels at home 80/40 etc, I was in and out of consciousness, struggling to breath without pain, with very low blood sugar, slurring speech and seizing⚡️

I was thankfully stabilised somewhat🥴However, my bladder is retaining fully and I have now been fitted with a catheter we are hoping and praying this is not a long term thing and we’ll find out in a few weeks 😅

More tests including looking at diabetes as a possible answer to my severely crashing blood sugars on top of things 💉

I got home yesterday but ended up seizing in the bathroom twice fortunately Scott got to me in time to put me on the floor in the recovery position before I hurt myself ⚡️

For now I shall be weirded out by my warm leg pouch and having less bathroom trips and spending all day everyday in bed watching Christmas movies 😅

Someone send me some positive vibes 😂😂 I swear I did something bad in a past life 🤦🏼‍♀️

16/11/2021

I’m still off baking unfortunately - we may be moving to a PEG-J but it’s a slow process however I am in London this week for an appointment and hoping for more stabilising drugs as after two anaphylaxis, 1 seizure, a lot of reactions this month and more weight loss - we really need it!

In the meantime, I’m filling in my time and motivating myself on Instagram on with daily makeup looks, unboxing of new products and little updates on how I’m doing!

I cannot wait to be back baking and I’m really hopeful I will get back as it will break my heart to have to think about the worst. But I’m still remaining positive - lots more physio, more tubes and building myself up slowly 💪🏼💪🏼💪🏼

09/11/2021

A little update from me -

First up - we should be hopefully in our new home in January! I can’t wait to show you all the new kitchen! 🌈

In other news - I’ve got a gastroenterologist appointment with my consultant this week to discuss what’s our next steps! My dietician is strongly against my tube being removed as it’s my lifeline currently to stop me losing weight and my MCAS/Epilepsy deteriorating further. So we’ve been advised to discuss changing my tube (as I’ve had this one in place for over four months and it’s getting uncomfortable!) or to move towards a Jejunostomy tube 😭 but I’m waiting out to discuss these options before setting my mind on one! 👏🏻

For context..
The J tube - This tube is placed through an incision in the abdomen through surgery. It allows for direct access to the jejunum which is the middle third of the small intestine as my feed is not tolerated within my stomach.

🎨🎨 To occupy me whilst I’m off - I’ve started doing Makeup Looks over on Instagram if anyone’s interested! 🎨🎨

02/11/2021

You can now read the FULL journey of my families life with Mast Cell Activation Syndrome at https://www.justgiving.com/fundraising/scott-fisher15

Please help this amazing charity out - every little penny counts towards raising awareness of disorders resulting from mast cell activation, increasing vital research in this area and striving for better diagnostics and treatment for patients suffering from MCAS.

22/10/2021

⬇️⬇️IMPORTANT BUSINESS UPDATE ⬇️⬇️

This year has been incredibly hard yet amazing at the same time - thanks to my amazing customers for their support and orders 📦

I have made the decision to temporarily close due to my ongoing situation as in reality there’s little hope of me getting back to business anywhere near before Christmas ❌

This does NOT mean I am shutting completely. NOR does it mean my page won’t be active 😊

We have some incredibly exciting news and The Allergy Queen and my family will be moving up North to our forever home - with even MORE ovens installed! Who knows you might find me at a market near you or in bigger dreams a shop front! 👀

So please bare with me during my recovery and whilst I step back for family time but I promise I will be back BIGGER than ever 👩🏼‍🦽💕

**The website has been taken down to avoid confusion as I’ve had several enquires about ordering**

18/10/2021

27 MARATHONS, IN 27 DAYS for Mast Cell Action.

THIS is what my husband is committing a month of his life over Christmas to support an amazing charity - Mast Cell Action! Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

Please help share this far and wide 💕

He has supported and is continuing to do so through our very long and debilitating journey of diagnosis, treatment and endless hospital stays and ongoing rehabilitation (See previous posts on The Allergy Queen for more of my journey)

The trauma of 10 minute long seizures, countless anaphylaxis, vomiting daily, being so weak that I cannot stand, being unable to eat anything, living life everyday filled with pain, losing 20kg in less than 6 months, a month and a half in hospital, blood clots, 50 drugs a day, wheelchair bound, community physiotherapy, community dieticians, NG tubes and now a NJ tube and becoming a shell of myself both physically and mentally - the list only goes on.

MCAS has taken part of my life away like every has for so many people but with such a rare number of people living with Mast Cell Activation Syndrome there is very little awareness including GPs right up to specialist consultants and there is a EXTREMELY limited number of specialist consultants that understand the disorder in order to treat it.

This is where my wonderful husband wants to push past those boundaries with your support and donations he is using every bit of willpower to achieve 27 marathons, in 27 days.

So I ask of you - please - can you help support this amazing charity to help raise awareness of MCAS.

Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

Thank you for reading and supporting us. We are working closely with the charity and if anyone would like to read a word document of my journey through diagnosis/symptoms/treatments/photos, please let me know and I’ll send it through.

**PLEASE NOTE - THIS IS NOT TO PAY FOR MY TREATMENT THIS MONEY IS GOING DIRECTLY AND WHOLEY TO THE CHARITY**

18/10/2021

“You’ll be lucky to be doing 10metres by Christmas with a walking frame” 👩🏼‍🦽

That’s what the future holds for me and my family. It’s a uncertain time as any day I try to spend out of bed, I end up paying for it the next day 🙃

BUT I’m so glad I made it out for my little girls friends birthday party! 😭 Mollie looked awesome as a Spider-Man Pirate ofcourse and daddy was prime bouncy castle material! 💪🏼

My physiotherapist had to reel my hopes in as I thought the more I pushed I’d be up and walking sooner but the realities are much different. I will be in a wheelchair much much longer than I thought as well as my feeding tube as I’m now losing weight again ⬇️

It’s hard to hear the words you really don’t want to hear but a sense of perspective gives me a goal to aim for rather than a impossible and soul crushing goal I had set myself and was drowning in sadness as my legs haven’t been doing what I want them to do.

It’s going to take time and a lot of effort but I’m forever greatful for my family and all my wonderful customers supporting me - despite my long journey back to the kitchen 💕

“The question is not how to get cured, but how to live.” Joseph Conrad 💪🏼