Team Eva

04/16/2026

🧡 April is Limb Loss & Limb Difference Awareness Month.

Meet Leanne, Ironman triathlete, red seal mechanic, CCS survivor, and queen of puns. 😄

Diagnosed with Clear Cell Sarcoma after a lump in her right palm, Leanne underwent a partial amputation and never stopped living. She adapted her sports, her career, and her life with humor and grace.

Even after a 2025 recurrence she caught herself by listening to her body, Leanne's message is clear: "Advocate for yourself. Even the smallest lump should get checked."

Read her story & meet other CCS warriors
🔗 www.clearcellsarcoma.org/patients

Have a limb loss story to share? We want to hear from you!
📧 [email protected]

04/16/2026

02/04/2026

Today is World Cancer Day.

Every cancer journey is unique, and behind every diagnosis is a person with a story, a family, fears, strength, and hope. Today we recognize and stand with everyone living with cancer. You are more than your disease — your voice, your needs, and your experience matter.

11/08/2025

11/08/2025

🎃💜 How fun is this?! Our friends at Hyatt Regency Cincinnati held a pumpkin decorating contest, and one of their creations was the GKTW Carousel! ✨🎠

Thank you to the Hyatt team for capturing the Village in such a creative (and festive!) way! 🍂💫

07/07/2025

CCS: The Cancer Medicine Forgets

Most doctors will never see a Clear Cell Sarcoma case. At just 1% of rare sarcomas, CCS slips through the cracks, while shattering young lives (average diagnosis: age 25). This isn't just rarity. It's isolation.

Share to help change that.

06/30/2025

06/30/2025

Get ready to Go Yellow for CCS Warriors!

Every July, something powerful happens. Our CCS family comes together to shine a light on this rare cancer that too few understand.

Here's how you can stand with us:

🌻 Share your story with
🌻Wear your heart with our CCSF awareness shirts
🌻Plant a sign in your yard to start conversations

When we go yellow together, researchers notice. Pharma notices. The world notices.

Let's make this July unforgettable. Who's joining us?

https://www.clearcellsarcoma.org/get-involved/ccs-awareness-month