09/03/2026
Oh where to start…
Only a handful of people know my story but I think it’s time I shared it.
2020 was one of the hardest years of my life, same year I lost both my mom and oldest brother back to back a month apart and my son who’ve I’ve struggled years of fertility treatments to have was diagnosed with Epilepsy at just 6 months of age💔. My world was falling apart caregiving for my mom at the time who was fighting for her life with both kidney and heart failure and caring for my little guy at the same time. Today we are here repeating the EEG test that originally gave us his diagnosis then, in hopes to help us navigate the best route for my son. Unfortunately his seizures haven’t been as stable as they should with his current medication. Over the past few years they’ve been gradually changing and with increased dosage we came to a point of an opportunity. Originally we were told he wouldn’t outgrow this, nor be able to have surgery. God works in mysterious ways, though we’d hope the medication would control them, as he’s grown his seizure have changing opening a new opportunity to potentially have surgery.
We have been waiting for this day for over a year with the hopes of this new study to help give the doctors some new insights of his particular seizures and narrow down where the activity in his brain is happening, if at all safe to proceed with such a risky surgery. There are so many factors to look at and evaluate to determine if the benefits outweigh the risks of going into such surgery. We are admitting to stay the whole week unless asked to stay longer to track as many seizure activity as possible.
Thank you to everyone who’s been checking in, the gifts, the positive messages and prayers towards my son and family. All is greatly appreciated at this time.
This is also a reminder that you never know what people are going through, please be kind💕🙏🏼
Bakery will be open, regular hours🫶
Favi💕
